Quick update, we have been admitted at Ochsner, Koen's fever is better 101-102 his heart rate is still very high 180-200 and respiratory rate is very fast 50-60, he is inconsolable for the most part (very very very out of character) we know he is in pain and we suspect an infection somewhere possibly, we know he is dealing with some constipation, we have ruled out pneumonia, flu, RSV and strep for sure, his lungs sound and look great, we believe his respiratory distress is be ... cause of his pain, same thing with his heart rate we know it's tied to pain and his fevers. As of now the goal is to find a way to make him comfortable and get his heart and respiratory rate down and find what is causing him pain. His white blood count wasn't too crazy high but he had another lab value that was high that we are watching, he is not tolerating his feeds at all so is on IV fluids and medication, we are starting oxygen and pain medication. Pray specificity that we find the source of the pain and we know how to treat it. That he stays stable, that he (and I) can get rest, and that we figure out what we are dealing with. It has been heartbreaking watching him in so much pain and distress. white colored items to wear for the cocktail party